Many people living with ME/CFS or Long Covid can continue to work, study or access services with the right support in place. Symptoms can fluctuate and may affect energy, concentration, memory, stamina and daily functioning, so flexibility is often key.
Understanding reasonable adjustments
Under the Equality Act 2010, people with ME/CFS or Long Covid may be entitled to reasonable adjustments to help reduce barriers at work, in education and when accessing services.
Adjustments should be tailored to the individual and may include:
- Flexible or adjusted working hours
- Home or hybrid working
- Additional rest breaks
- Reduced workloads or phased returns to work
- Quiet workspaces
- Virtual or telephone appointments
- Written follow-up notes after meetings
- Alternative communication methods, such as email instead of phone calls
Talking to your employer or education provider
Open communication can help others understand how your condition affects you and what support may be helpful.
Consider:
- Explaining how symptoms affect your daily activities
- Discussing adjustments that could reduce symptoms and fatigue
- Reviewing support regularly, as needs may change over time
You do not always need to have all the answers yourself – adjustments can be explored collaboratively.
Accessing healthcare and other services
Reasonable adjustments are not limited to the workplace. Healthcare providers, public services, colleges, universities and many other organisations also have a duty to consider adjustments that improve accessibility for those who need it.
Examples may include:
- Accessible appointment formats
- Reduced sensory stimulation
- Flexible communication options
- Accessible information and documentation
Support looks different for everyone. Identifying what helps you manage your symptoms and communicating those needs can make work, education and everyday services more accessible and sustainable.
Find out more:
Source: Information adapted from Action for ME’s Work and Welfare resources and Guide to Reasonable Adjustments.