Living with ME/CFS or Long Covid can affect not only the individual but also the people around them. Family members, friends and carers often play an important role in providing practical, emotional and day-to-day support.
Because these conditions can fluctuate and are often invisible to others, it can sometimes be difficult for loved ones to fully understand the impact symptoms have on daily life. Access to reliable information can help everyone feel more informed, supported and connected.
Understanding ME/CFS and Long Covid
Learning about the condition can help family members, friends and carers better understand symptoms such as fatigue, post-exertional malaise (PEM), brain fog, sleep difficulties and fluctuating levels of function.
What are ME/CFS and Long Covid?Supporting Someone You Care About
Providing support may involve:
- Understanding the importance of pacing and energy management
- Respecting changing symptoms and limitations
- Helping with practical tasks and daily activities
- Listening without judgement
- Supporting healthcare, education or workplace discussions
Small adjustments and understanding can make a significant difference.
Looking After Yourself as a Carer
Supporting someone with a long-term condition can be rewarding but can also be physically and emotionally demanding.
Carers are encouraged to:
- Recognise their own support needs
- Take breaks where possible
- Access information and advice
- Seek help when they need it
Looking after your own wellbeing is an important part of providing sustainable support to others.
Young Carers and Family Life
Children and young people may also take on caring responsibilities when a family member has ME/CFS or Long Covid. Accessing appropriate support and understanding can help young carers balance family responsibilities, education and their own wellbeing.
ME/CFS and Long Covid can affect the whole family. Understanding, flexibility and open communication can help create a supportive environment for everyone involved, while ensuring that carers, family members and friends also receive the support they need.
Further Information
Carers, family, and friends – Action for ME – visit the Action for M.E website to find out more about carers, family and friends of someone living with these conditions.